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What name is given to the disease?


Estimated numbers of patients

Pendin

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Status of recognition

There is a great lack of knowledge in Public/National Health Care.


Specialism used to treat ME

There are isolated professionals who know the pathology but who are lacking in support to care adequately for patients. Unattended patients are usually referred to mental healthcare and family members end up doubting about the disease. No specialty and no units exist that makes the diagnosis and/or follow-up of patients.

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Average time before diagnosis

Diagnostic delay between 2-10 years. Specialism used to treat ME


Guidelines used

No diagnostic criteria are implemented

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Disability status of patients

To receive disability aids is difficult, even in severe cases, and patients must appeal judicially to get benefits.


Other Observations

There are private centres that begin to treat patients in a multidisciplinary way. These groups are committed by using the term “Central Sensitivity Syndrome” where they cluster Fibromyalgia, ME/CFS, Migraine, Irritable Bowel Syndrome ....

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